Grief Tonight, and a Memory or Two

We're sending a virtual hug to our son tonight, as word reached Yukon and I that Wolf's paternal grandfather passed away last evening at the age of 90. I don't often speak of my former husband or his family, mostly to preserve everyone's privacy, so those who do not know of our history together may be surprised at this news.

"Popau" (Greek for 'Grandfather') was a tough little bird of a man, having joined the Navy as a very young age (15, I think) and was serving as Chief aboard the U.S. Houston at the beginning of WWII. The Houston was sunk early in the War after an overnight battle that left this young NCO standing on the deck with water lapping at his ankles. He jumped off and spent the next 24 hours in shark-infested waters of the South Pacific until a Japanese patrol picked him up, covered in diesel oil, and transported him to a prison camp notorious for its inhumane conditions and location on the famous "Death Railway". Popau spent the entire length of WWII at this location, working and marching nonstop until liberated. He is a testament to the sheer willpower and force of one man's determination, and my son was a fascinated listener to the few times Popau would share his story.

Wolf, we think, does not know yet of his grandfather's death. I have called the school to check, and they had not heard from his father. I gave them a heads up and told them that we would be down next week to provide our additional support. The timing of our visit, now more than ever, seems providential and we are so grateful we can be there to help our son deal with grief in his own way.

Kids with AS are not always able to clearly identify grief, at least, not how we would describe it. They know sadness and anger, but cannot put them into definable words or concepts and as a result, tend to act out. Sometimes kids will appear stoic, only to erupt much later and for no apparent reason toward those who are not aware of the cause. What we perceive to be appropriate grieving may be lost on the child with AS, as is behavior at funerals or functions where people may be acting in a way uncomfortable and unidentifiable for kids like Wolf.

So, a prayer or moment of thought for Wolf, his father's family, and his Popau, who, no doubt, is now celebrating with his Navy buddies at the Gates of Heaven that they all are, finally, together again. Let the whistle blow, Chief, one last time.

Christmas in the Wolf Den

We finally decided to call Wolf yesterday after an uncharacteristic silence on Christmas day. More intrigued than worried, we wanted to be sure Wolf understood the importance of calling parents on major holidays.

The staff who answered the phone laughed when I told him we had not heard from our son, putting us in a more relaxed state of mind for sure. Especially when we found out why. Apparently the kids were allowed to play Nintendo DS and watch "Terminator: Salvation" Christmas afternoon after opening their gifts, and, as always happens with Wolf when movies are involved, it just "slipped his mind" to call the benefactors who made his Christmas possible.

When pressed for more information on his receivables this Christmas, he responded with "Great! I got lots of clothes." I guess we've reached the place where clothing has greater value than the Bionicles of last year. Fascinating. He does like to pay attention (to a point) to his looks these days, and I guess that's just part of turning 16. I'm just curious to know his perception of "cool".

We head down to CHYC on January 4th. This visit will be full of meetings, plotting, and planning, for the same clock that brought his body to maturity will now be counting down the days to legal adulthood in the eyes of the System, and Yukon and I have much to do.

The photo above is a sampler of Wolf's school Christmas crafts as a small child. I always bring out the kids' art work for display during the holidays, just like my mom did. It seems doubly important, now.

Christmas is a Season in Alaska

As a statement of relief to all those who nearly panicked when their boxes had not arrived as of the 23rd of December, fear not. They did ultimately show up in spite of our mailman.

I always tell people not to worry if presents don't arrive on time, as Christmas is a season in Alaska. Well, so are birthdays, anniversaries, etc. because we never really know when, or if, gifts mailed up here will arrive.

We do not, ever, send things Parcel Post, as a little heads up from We Who Have Been There. The potential for disappointment on the receiving end is not worth the few bucks saved.

At any rate, our Christmas was lovely; Christmas pageant, presents, good will and all. We entertained good friends and even invented a new cocktail using crowberry syrup from a friend and from my own stash left over from the summer's picking adventures. Kirkland Crowberry Cosmos are destined for greatness, I'm sure of it.

Santa arrived in good time and left Bear a large train that emits various sounds from its large engine. He also brought Army Men and a plethora of Playmobile characters. I told Bear he is not allowed to say "I don't have anything to do" for the rest of the winter, and perhaps into the coming year...

We haven't heard from Wolf yet but I am sure CHYC kept the kids busy yesterday; as soon as I talk with him I'll find out how his day went.

Merry Christmas, Happy almost New-Year, and blessings to everyone from Anchorage, Alaska.

Yes, Wolf, There is a Santa Claus

I quit believing in Santa Claus when I was in sixth grade. I found out that Santa and my mother had the same handwriting and assumed the jig was up. I put on a good show, though, for the next few years but ultimately fell into the grownup world of realism and making the magic for other, smaller people, like my children.

Last Christmas I changed my mind about that.

The hardest thing in the world for a parent is to be without a child at Christmastime. Not the adult children whom we have released to spread their own wings and create their own Christmas memories with their own families. I'm talking about our children who are so fragile and delicate in their respective ways, and so young (mentally, physically, or otherwise) to be without mom or dad on the most magical night of the year. Of course I'm talking about my own son, and the 100 or so other boys and girls, young men and women, who reside at CHYC and are not able to be with those most important to them.

With the past few days filled with emotional undercurrents threatening to spill over into my Christmas-infused brain tonight, it was evident that I needed a diversion. Bear and I had been talking about Santa Claus and his proximity to our home here in Alaska, and we brought up the NORAD Santa Tracker web site in order to ensure Santa's arrival at Evergreen Street.

As we watched the screen load, and anticipation build, Bear asked if Santa knew where Wolf was tonight. I told him that Santa knew where all of his children were on Christmas Eve and beyond, so devoted he is. The screen flashed, and NORAD had spotted the Man in Red moving somewhere in the Mid West. The sleigh paused a moment then flew on. Right to West Jordan, Utah, where it stopped. And stayed.

You see, the magic that is Santa and Christmas and God and His Son poured out all at once to a little school in the Southwest United States and into the soul of my son, and other mothers' sons, to show us once and for all, indeed, He is here, and there, and simply everywhere tonight. If for no other reason than to soothe a hundred anxious hearts on this Night of All Nights.

As a journalist, I treasure the words of newsman Francis Pharcellus Church from 1897 in his editorial response to a young girl questioning the existence of Santa Claus. "He exists as certainly as love and generosity and devotion exist, and you know that they abound and give to your life its highest beauty and joy."

I believe, as surely as that pre-adult son of mine lies in bed tonight dreaming of tomorrow.

"...he lives, and he lives forever."

Happy Christmas to all, and to all, a good night.

Update From the Wolf Den: A Need for Grace

This is one of those days when I struggle to extend grace; to the staff, to my son, and to myself.

A small incident this morning during a routine conference call led to some asserting of my parental authority that subsequently led to silence and what I am sure were some interesting looks around the table at which I was not physically seated.

The most interesting part is my intellectual understanding of how things can be overlooked; I used to do a similar job and know how difficult it is to manage the intricate care plans and procedures for many people (heck, I obviously could not do it for one child). However, from my emotional perspective as a parent I ask that meticulous care be provided for my child in addition to everyone else's. I know the rules, I know the regs, and I will demand they be followed. Every. Time.

I am fighting the urge to hop on a plane and find out what else is going on down there. Just a little bit of trust has been depleted, not much, and not for a major reason, but a bit nonetheless.

Rest assured Wolf is cared for and loved by staff. They just overlooked something I had explicitly asked for and did not receive. Made my point, and hopefully it is over.

But then, with a child in a residential setting, it is never really over.

A Polar-Plunging Sort of Day

After our 18 inches of snow last week, the weather cleared and the temperature dropped just in time for the annual Special Olympics Polar Plunge, held at a local lake we frequent year-round.

This year I am a 'Ski Buddy' to kids and young adults on the S.O. Ski Team, so we decided to make the Polar Plunge a family fun day despite the 2 degree temperatures. After a serious search for our warmest and winteriest clothing I reserve for the really, really cold days, we packed up the sled and arrived at Goose Lake in time to hear the first few folks take their dives into insanity.

We had to walk a good half-mile from our parking spot at the University of Anchorage due to the incredible volume of plungers and spectators, so that warmed us up but not Bear, who forgot to wear his balaclava (neck, head, face-warmer thing that goes under his hat) and had frozen ears upon our arrival at the lake. Yukon, in a gesture of true love, switched hats with Bear and thus made for a much more enjoyable afternoon.

Our friend K was jumping and we joined his family on the sidelines to witness his bold, batman-costumed leap into the 5 ft deep hold of cold water. Yukon swears that next year he'll get his own team together from the VA and make the leap himself. Such a brave man. Couldn't get me to do it. My feet were cold enough just watching, and it took me all afternoon to warm up.

Hot toddies all around, tonight!

The Little Child Shall Lead Them

I do not often become emotionally involved in Christmas pageants, unless you count 'emotionally unstable' when I am helping herd a bunch of angels, shepherds, and an unwilling Joseph to walk next to an eye-batting Mary. The annual preschool Christmas play last night, however, gave me cause to break out the kleenex and stop shooting half-focused pictures.

Bear's class did a wonderful reinactment of the Christmas story, thanks to the efforts of three very experienced and very patient-but-firm teachers. There were no mishaps, no tantrums, and no reason for tears during the pageant, and Bear performed well under the intense pressure of a hundred or so parents and friends wielding video cameras.

The emotional part came at the very end, when all but one of the children were ushered out of the sanctuary, save for Bear's Girlie, R.

See, R's daddy is a Chaplain in the U.S. Army and is currently deployed to Iraq. He won't be here for Christmas, and won't see his kids or wife until they all meet in February at a classified tropical destination for some much-deserved R&R.

The preschool teacher, who has seen more than her share of deployed parents and left-behind children, helps everyone ease the potential pain of missing dads or moms during the holidays with a little help from 21st century technology.

The church Web-Cam was fired up and pointed directly at the pageant, where R's daddy could see her debut as Mary, and then listen to her say her own personal Christmas wish to him so far, far away in a desert place she neither knows about nor understands.

"Hi Daddy, Merry Christmas and I love you."

Best present ever, don't you think?