Nearly 700 times I've sat down at my desk and written about our life in Alaska; the joys, sorrows, and moments of awe that come from living in a place so far north. Many things have been unexpected, and many, downright painful, but like the Athabascan term for which this blog is named, all have led toward a deeper understanding of my life, and that of my family's.
I began Elituq: She is Learning after I made the decision to leave my part-time job as communications director for a local agency serving individuals with Alzheimer's disease and related dementias. It was the right decision; Wolf's behaviors were escalating to the point where my support group facilitation skills were being overshadowed by my own need for periodic emotional rescues. I wanted to write about Alaska, too, and had an opportunity to do so, opening doors through which I have happily walked. This blog was a lovely, comfortable fit for me to share a peek into our world for family and friends who live so far away.
As the months went on and it became obvious Wolf was in need of assistance we could no longer provide, blog posts turned into a means of communicating the difficult decision of transitioning Wolf from our home to residential treatment Outside. I suppose it was both a crutch and a means of support to be able to network with other parents and write words I didn't have the courage to speak over the telephone to my own family.
In the four years since, Elituq has meant different things to different people; a means of keeping tabs on our busy life, and a way to see how Alaskans temper personal feelings for the necessary actions regarding medical care.
We've all grown during these seasons of my musings; Yukon, Bear, and Wolf, perhaps most of all. It is time for all of us to move on to the next phase of our lives, and it is at this point I feel Elituq: She is Learning has served its purpose.
One of the most important lessons I've learned as a writer is knowing when to end the story. Perhaps you have been lifted up by a particular blog post, or photograph, or a link to some of the other fantastic blog friends I have come to know, and one in particular who has known me almost my entire life.
My writing continues, but with a different focus. It is time, and it feels right. And I thank you for reading; my world has been enriched.
EK
*The blog will stay active for a while, for those who wish, as I have these past few weeks, to go back and read how it all started.*
Showing posts with label What we learned. Show all posts
Showing posts with label What we learned. Show all posts
Monday, July 9, 2012
Monday, May 14, 2012
We'll Let Go the Dark...
It's no secret that this blog has for years represented an extension of my inner thoughts concerning Wolf, Bear, Yukon and I. Mostly, anyway.
But lately...well, lately blogging about Wolf has become less an outlet than a chore, but something, I recently found out, that is not all bad.
Wolf is still struggling mightily; some violent episodes of self-harm a few weeks ago left everyone involved scratching our heads and wondering what, if anything, could we do to help he and we survive the rest of his life. Of course I only slightly panicked at the idea of nobody in Alaska accepting Wolf for independent living, and of course I managed to pull it back together when Therapist J. called to run down the latest laundry list of odd behaviors.
But here's what happened, next.
Therapist J., a longtime professional in the world of troubled teenage boys, said something that probably should have been said four years ago when Yukon traveled 3,000 miles to deliver Wolf to the first residential facility.
After calmly stating the most recent incidents, and reiterating his belief that Wolf is indeed choosing many of these behaviors and not exibiting an organic reason for them, Therapist J was silent for a second on the telephone in Colorado. Then he said, "It's time to focus on what you have there, and let us focus on him, here. Wolf is safe, he is loved, he is cared for, here. What you need to do now is let your husband love you, care for you and your other son, and let go."
Let go. Let it go. Let him go.
My life has been defined by the past, present, and future of Wolf, and someone just offered me a gift of doing all the worrying and fretting and hand-wringing for me. Focus on what is good, and let them deal with the bad.
Love Wolf as simply as that, because finally someone told us they have our backs.
Amazing, and freeing. It will be interesting to see where this takes Elituq: She is Learning.
But lately...well, lately blogging about Wolf has become less an outlet than a chore, but something, I recently found out, that is not all bad.
Wolf is still struggling mightily; some violent episodes of self-harm a few weeks ago left everyone involved scratching our heads and wondering what, if anything, could we do to help he and we survive the rest of his life. Of course I only slightly panicked at the idea of nobody in Alaska accepting Wolf for independent living, and of course I managed to pull it back together when Therapist J. called to run down the latest laundry list of odd behaviors.
But here's what happened, next.
Therapist J., a longtime professional in the world of troubled teenage boys, said something that probably should have been said four years ago when Yukon traveled 3,000 miles to deliver Wolf to the first residential facility.
After calmly stating the most recent incidents, and reiterating his belief that Wolf is indeed choosing many of these behaviors and not exibiting an organic reason for them, Therapist J was silent for a second on the telephone in Colorado. Then he said, "It's time to focus on what you have there, and let us focus on him, here. Wolf is safe, he is loved, he is cared for, here. What you need to do now is let your husband love you, care for you and your other son, and let go."
Let go. Let it go. Let him go.
My life has been defined by the past, present, and future of Wolf, and someone just offered me a gift of doing all the worrying and fretting and hand-wringing for me. Focus on what is good, and let them deal with the bad.
Love Wolf as simply as that, because finally someone told us they have our backs.
Amazing, and freeing. It will be interesting to see where this takes Elituq: She is Learning.
Labels:
Asperger Syndrome,
Behavorial health,
Family,
What we learned
Wednesday, April 18, 2012
Eighteen is a Number - Special Post for Public Radio
One of my favorite freelance jobs is blogging for Kids These Days Radio, a weekly program targeting parents and caregivers. Heard Alaska-wide, the show delves into issues around Alaska's children, and for my part, I offer perspective about travel and tourism in and out of the state.
But occasionally I delve into our experience with Wolf. Yesterday's show was centered around Autism in Alaska; rates of diagnosis, special considerations for rural communities, and a post by me. The show's producer is always interested in our lives, what we are doing to mitigate Wolf's difficulties, his future, and such. She asked me if I'd write a short essay about Wolf's 18th birthday, and I did.
It was, surprisingly, one of the easiest pieces I've ever done. Here it is (sorry for the small print):
But occasionally I delve into our experience with Wolf. Yesterday's show was centered around Autism in Alaska; rates of diagnosis, special considerations for rural communities, and a post by me. The show's producer is always interested in our lives, what we are doing to mitigate Wolf's difficulties, his future, and such. She asked me if I'd write a short essay about Wolf's 18th birthday, and I did.
It was, surprisingly, one of the easiest pieces I've ever done. Here it is (sorry for the small print):
"The afternoon my oldest son turned eighteen, I cried. Nose-running, chest-heaving crying, with wretched tears that froze on my cheeks as I ran across snowy trails near our Anchorage home. It was a day I had dreaded with uncertain anticipation. Suddenly, it was here, and I was still not ready.
My son, like so many children, suffers from and fights with an autism spectrum disorder frequently referred to as Asperger Syndrome. Characterized by an overdose of impulsive behavior and an under-dose of social skills, my son, MJ, is nothing if not the Weirdest Kid on the Block, a label his stepfather and I have mostly been able to shield him against with all our parental powers.
At eighteen, MJ and thousands of Alaska children are considered officially “adults” in an academic sense. They can vote, boys must register for the Selective Service, and a flurry of college information fills the mailbox. It is a time of independence, either real or perceived, and our son is no different in his zeal for all the honors and benefits of finally becoming “old enough.”
But MJ has no idea what “old enough” really means. A resident of an out-of-state treatment facility since 2008, MJ has struggled to learn the most basic of social skills; from merely parroting a “Hi, how are you?” phrase, to practicing regular hygiene and grooming habits. It is an agonizingly slow process, filled with false starts and backward steps, and little, tiny inches forward. Staff at his current residence are infinitely patient, yet firm; they know better than we how the world sees young adults like MJ, and they want him to get this right.
It was almost easier to manage MJ as a young child; at least then I could reinforce with the authority of a typical Aspie Mom. But at eighteen, a difficult decision awaits parents of children with disabilities. Along with figurative independence also comes the literal and legal meaning of the word, and MJ, for better or worse, was now able to make decisions regarding his health and well-being. He could, in effect, sign his name on the dotted line of discharge forms and go about his business in Denver, Colorado with no one lifting a finger to stop him.
The decision to establish guardianship was made shortly before his birthday, after hours of conversations and meetings and prayerful discernment. Guardianship was granted shortly after his birthday, with little resistance but not without confusion on the part of MJ, although we explained over and over our reasons for wanting to keep him healthy and safe. What we didn’t tell him was our intention of saving him from himself, because for a young man today to appear “odd” or “looking funny,” statistics of violence and police intervention almost immediately stacked the deck against our 6-foot, two-inch tall young adult.
To his credit, however, MJ is finally pushing back at the darkness which has threatened to consume his soul as a younger teen. He sees, if however tenuously, the connection between how one looks and acts, and how people treat each other accordingly. He will graduate from high school with a fairly high grade point average, an amazing feat considering he has had so little success in other aspects of his life. Our family is working with a team sent from heaven at the Arc of Anchorage, who do not shake their heads in the negative when I mention potential roadblocks. Arc staff will teach him how to ride the bus, be successful at a job, go shopping, exercise, and be happy with who he is.
With so much left to learn, I sometimes look at this man-boy during our internet face time and wonder how he has managed to hang on for so long. Perhaps it is my husband and I who need to step back, recognize his courage, and allow him to own his future, instead of asking ourselves for the millionth time, “Why did this happen?”
One of my literary heroes, Norman Maclean, author of “A River Runs Through It” explained it perfectly to me one day in his book, as I sat on an airplane, whizzing through the sky after a particularly meaningful visit to MJ:
“...And so it is those we live with who elude us. But we can still love them - we can love completely without complete understanding.”
Perhaps this journey of maturation has not only occurred in our son. Eighteen is, after all, only a number, and we have a lifetime yet in which to grow."
Erin Kirkland is a regular contributor to Kids These Days, posting weekly at KTDontheGO. Read more about her family’s journey through Asperger Syndrome at “Elituq: She is Learning” (http://www.elituqakbrady.blogspot.com.
Thursday, March 29, 2012
A Year Later: How Our Lives Have Changed
My office window looks east toward the Chugach mountains. On a clear day I can see the bright, white snow topping nearby peaks, and spot eagles that are starting to reappear, soaring high above in lazy circles. Today started out like this, but since has become cloudy and a bit distorted, with naked Cottonwood and Birch trees sticking up from piles and piles of wet, heavy snow.
Was it just like this a year ago?
Yukon has obliquely mentioned the one-year anniversary of his bicycle accident with a typical Yukon-style approach: "It's all good, now." I know he hasn't forgotten the whole thing - a long, winding scar on his elbow and constant trips to the hemotologist and occupational therapist won't allow him the luxury of completely erasing that day.
I thought I had done a pretty good job of moving on, even commenting just last week about the swiftness of time. Here we are, looking at the calendar, 24 hours away from the day a hole in the ground made us all think good and hard about life, and love, and the value of both. All in one long, short year.
This is the beginning of my busiest season, as it was last year. I mentioned to someone the other day how very behind I felt - way, way behind, when actually I was way, way ahead. It finally dawned on me that I feel this way because I don't even remember last April. The span of time between March 30 and April 30, 2011 is a nebulous sort of black and white cloud in which I barely managed to care for more than the basic needs of body and soul, and I'm not even sure about the soul part. Tragedy will do that to a person.
The external signals of spring are what prompted me to double-check my emotions. Last week I was driving to the U-Med campus for a meeting (the same meeting I had attended this time last year). It was a sort of dreary, early-spring day, with low clouds and wet streets, and I didn't pay much attention to my environment until stopped at the traffic light.
"Emergency" the bright red sign said.
I remembered clearly, then, the frantic trips, fumbling to talk on my cell phone as I hastilly arranged childcare. I remembered the gritty car, leaving it sitting in the loading zone for over an hour while everybody tried their best to help my husband. I remembered friends who met me there, not once, not twice, but three times, each visit watching further deterioration and sharing my agony at the moment we realized things could turn out very, very badly. I even remembered what I was wearing and what song was playing on the radio that final ER visit as I swung my car into a restricted parking spot, not caring a damn if I was towed.
But Yukon made it. He's still here. We're all still here. A bit older, perhaps, a bit wiser to the ways of fate, but we're here.
Life is far, far too short to realize that, every day.
Was it just like this a year ago?
Yukon has obliquely mentioned the one-year anniversary of his bicycle accident with a typical Yukon-style approach: "It's all good, now." I know he hasn't forgotten the whole thing - a long, winding scar on his elbow and constant trips to the hemotologist and occupational therapist won't allow him the luxury of completely erasing that day.
I thought I had done a pretty good job of moving on, even commenting just last week about the swiftness of time. Here we are, looking at the calendar, 24 hours away from the day a hole in the ground made us all think good and hard about life, and love, and the value of both. All in one long, short year.
This is the beginning of my busiest season, as it was last year. I mentioned to someone the other day how very behind I felt - way, way behind, when actually I was way, way ahead. It finally dawned on me that I feel this way because I don't even remember last April. The span of time between March 30 and April 30, 2011 is a nebulous sort of black and white cloud in which I barely managed to care for more than the basic needs of body and soul, and I'm not even sure about the soul part. Tragedy will do that to a person.
The external signals of spring are what prompted me to double-check my emotions. Last week I was driving to the U-Med campus for a meeting (the same meeting I had attended this time last year). It was a sort of dreary, early-spring day, with low clouds and wet streets, and I didn't pay much attention to my environment until stopped at the traffic light.
"Emergency" the bright red sign said.
I remembered clearly, then, the frantic trips, fumbling to talk on my cell phone as I hastilly arranged childcare. I remembered the gritty car, leaving it sitting in the loading zone for over an hour while everybody tried their best to help my husband. I remembered friends who met me there, not once, not twice, but three times, each visit watching further deterioration and sharing my agony at the moment we realized things could turn out very, very badly. I even remembered what I was wearing and what song was playing on the radio that final ER visit as I swung my car into a restricted parking spot, not caring a damn if I was towed.
But Yukon made it. He's still here. We're all still here. A bit older, perhaps, a bit wiser to the ways of fate, but we're here.
Life is far, far too short to realize that, every day.
Friday, February 10, 2012
It is Done, Should We Send Announcements? Update From the Wolf Den
As Yukon, Bear, and I were departing Nesbitt Courthouse in downtown Anchorage yesterday, a funny feeling of anticipation welled up inside my shaken mother-body. I'm not exactly sure how to explain it, but with the banging of the magistrate's gavel at 11:24 a.m., Yukon and I entered into a brand new world of parenting. A birth, of sorts.
Of course we're still Wolf's mom and step-dad; that sort of relationship will never change, as it will never change for any of us. Parents are parents no matter how old our kids grow to be. But this is different. Somebody is telling us, and him, we are in charge. Now, and for the duration of our lives.
We fill out a form for a birth certificate a day or so after our children are physically born to us, usually in the hospital. Yesterday's stack of forms felt the same, but attached was an overwhelming sense of relief (and anxiety) that Wolf has to rely on us for guidance in his near and far future (at least, for now).
Remember when you walked in the door with your newborn and just sort of stared at him or her, unsure of what exactly to do next? We feel that way today; carrying this new responsibility around with us the same as if it were a 7lb baby. It's crazy.
We're now (re) parents to a 6' 2", 167lb 18 year-old.
Of course we're still Wolf's mom and step-dad; that sort of relationship will never change, as it will never change for any of us. Parents are parents no matter how old our kids grow to be. But this is different. Somebody is telling us, and him, we are in charge. Now, and for the duration of our lives.
We fill out a form for a birth certificate a day or so after our children are physically born to us, usually in the hospital. Yesterday's stack of forms felt the same, but attached was an overwhelming sense of relief (and anxiety) that Wolf has to rely on us for guidance in his near and far future (at least, for now).
Remember when you walked in the door with your newborn and just sort of stared at him or her, unsure of what exactly to do next? We feel that way today; carrying this new responsibility around with us the same as if it were a 7lb baby. It's crazy.
We're now (re) parents to a 6' 2", 167lb 18 year-old.
Labels:
Asperger Syndrome,
Behavorial health,
Family,
What we learned
Wednesday, February 8, 2012
Guardian: An Update From the Wolf Den
The clock has tick-tocked its way from 1994 to 2012. According to the United States of America, that means Wolf is an adult. But we know he is not.
According to the Selective Service, he is required to register, as an adult. But, we know, he will never serve.
According to the University of Alaska Anchorage, and a wide range of other instutitions of higher learning, he is soon to be a college freshman. But we know, right now, he will not.
Tomorrow, we are hopeful that the Superior Court of the State of Alaska will agree, and grant Yukon and I guardianship of our adult (but not) son.
Hoops have been jumped through, volumes of reports have been written, conversations have occurred, and tears have ensued. The ramifications of what we are about to do are not lost on us; we understand that with one sweep of a pen, the presiding judge will, in effect, take away many of Wolf's independent, adult rights to choose his own life's direction, at least for now. He will be on the phone to hear this.
The appointed Court Visitor asked, during our initial phone conversation, why I wanted to pursue guardianship. With all due respect, I replied, I don't think any parent would "want" to take away the rights of their adult child, necessary or not.
I don't want to do this, I said. But after 18 years of trying to raise a disbled child, there is one thing I have learned:
It's not ever going to be about what I want.
According to the Selective Service, he is required to register, as an adult. But, we know, he will never serve.
According to the University of Alaska Anchorage, and a wide range of other instutitions of higher learning, he is soon to be a college freshman. But we know, right now, he will not.
Tomorrow, we are hopeful that the Superior Court of the State of Alaska will agree, and grant Yukon and I guardianship of our adult (but not) son.
Hoops have been jumped through, volumes of reports have been written, conversations have occurred, and tears have ensued. The ramifications of what we are about to do are not lost on us; we understand that with one sweep of a pen, the presiding judge will, in effect, take away many of Wolf's independent, adult rights to choose his own life's direction, at least for now. He will be on the phone to hear this.
The appointed Court Visitor asked, during our initial phone conversation, why I wanted to pursue guardianship. With all due respect, I replied, I don't think any parent would "want" to take away the rights of their adult child, necessary or not.
I don't want to do this, I said. But after 18 years of trying to raise a disbled child, there is one thing I have learned:
It's not ever going to be about what I want.
Wednesday, February 1, 2012
Visiting Pearl Harbor was pretty special for us. From different military branches and for different reasons, both Yukon and I knew people who served, fought, and subesquently were able to share their experiences with family. An opportunity to walk on the same soil was, for Yukon in particular, sacred.
My great aunt was a nurse in Honolulu's Catholic hospital on December 7, 1941. A free spirited lady, born and raised in Montana but wanting to see the world (wonder where I got the wanderbug; look no further), she had married a native Hawaii'an and settled in the city. When the planes flew over and bombs began to fall, she busied herself with getting over to the bases and helping wherever she could, though not enlisted in the armed forces; not yet. After things settled down, she flew home to Montana, "borrowed" her younger sister's birth certificate (Aunt H was considered too old to enlist at the age of 30), and became an Army Lt., eventually becoming one of the first medical personnel to accompany Gen. Eisenhower into Dachau to liberate thousands of concentration camp prisoners. And all because of one day that, indeed, lived in infamy.
Yukon's father was a lowly navigator for the Submarine Service, and traveled in and out of Pearl Harbor frequently. He joined up the day of the attacks, and was sent to Pearl to help with the salvage of the many ships destroyed on December 7, before spending the majority of time encountering Japanese ships in the South Pacific, returning to Pearl for resupplying. We toured the USS Bowfin, a sub exactly like those Yukon's father sailed.
Then there was Bear. Like most kids, a historical site like the ones at the WWII Valor in the Pacific is full of things to see, touch, and soak up. With such deep military roots, Bear was anxious to know about submarines and wars and the people who fought them. Especially at the USS Arizona memorial, his understanding became clear as he peered below the stark, white monument to the oily depths below, where hundreds of souls still lay. He got it.
We spent the entire day at Pearl Harbor. For me, it was a chance to quietly honor those I know, and those I never did. We took a lot of photos, but in them no one is smiling. And that was how we felt it should be.
Friday, January 20, 2012
From the Wolf Den: Educating and Graduating, or Not
I've spent the day on my laptop, clickety-clacking away in the hope that someone in the Alaska educational field would be able to tell me how to graduate my kid.
Wolf has successfully (or, almost so) completed his credits for high school. A decided advantage to having a child in residential care is the commitment to year-round schooling, because these facilities (as opposed to mainstream school districts) know structure is master where education is involved. So, even though Wolf has had myriad false starts on many a school day, he nonetheless has gathered up enough credits at various residential institutions to, in theory, graduate. But there is one problem.
Alaska is a state with an "exit exam" that actually proves a student's aptitude. While I have many reservations about the whole program for a number of unrelated reasons, I also have several specific questions about how a child who has never attended an Alaskan high school could possibly be expected to take a test about which he knows nothing. Or, at least, not what other Alaska kids have been tutored to pass.
Wolf left the Anchorage School District in 8th grade; moved to a parochial school, he attended September through May, then moved down to CHYC in Utah; after which began the second tier of behavioral health madness.
Nobody seems to have an answer for me; Wolf continues to be the conundrum of education, just as he was for state behavioral health social workers.
Perhaps by the time he is 21 we shall have an answer.
Perhaps.
Wolf has successfully (or, almost so) completed his credits for high school. A decided advantage to having a child in residential care is the commitment to year-round schooling, because these facilities (as opposed to mainstream school districts) know structure is master where education is involved. So, even though Wolf has had myriad false starts on many a school day, he nonetheless has gathered up enough credits at various residential institutions to, in theory, graduate. But there is one problem.
Alaska is a state with an "exit exam" that actually proves a student's aptitude. While I have many reservations about the whole program for a number of unrelated reasons, I also have several specific questions about how a child who has never attended an Alaskan high school could possibly be expected to take a test about which he knows nothing. Or, at least, not what other Alaska kids have been tutored to pass.
Wolf left the Anchorage School District in 8th grade; moved to a parochial school, he attended September through May, then moved down to CHYC in Utah; after which began the second tier of behavioral health madness.
Nobody seems to have an answer for me; Wolf continues to be the conundrum of education, just as he was for state behavioral health social workers.
Perhaps by the time he is 21 we shall have an answer.
Perhaps.
Friday, January 6, 2012
Occupy Wolf

Today my oldest child turns 18. I, like so many other parents whose children are now considered by the world to be clinical adults, am greeting this day with joy and sorrow. Mostly joy, though.
I thought of the People -
People who have walked beside us these past 18 years, witnessing the arrival of this incredible kid and becoming immersed in his physical, spiritual, and emotional growth. You are the people who have put up with pushy playdates, biting, running off, and an inappropriate mouth. You are the angels who have picked up our son from the gritty soil and placed him gently in the arms of other angels. Some of you, I have never met in person. Thank you.
People who have been the cornerstones of "practicalities." Things like school, medical appointments, or insurance approvals. You have been the ones to say "yes" when everyone else said "no." The teacher who spent three afternoons a week personally tutoring Wolf, the counselor who cried when we relayed a story about the circumstances around his birth, the Alaska utilization reviewer who fought hard for Wolf's current arrangement. You believed me. You believed in him. Thank you.
People who have never met Wolf. Not once. But you car for our younger son when Yukon and I must travel far away; you go like mad to keep up with me when I just need to get outside and run the feelings of despondency away; you light candles, pray, contemplate, or simply sit in support of our family. You send me notes, texts, and wine. Thank you.
That's an Occupy with staying power.
Labels:
Behavorial health,
Children,
Family,
What we learned
Sunday, December 18, 2011
From the Wolf Den: IT.

This weekend I've done just about everything I can to avoid doing what I really should.
Actually, I should have done it a few years ago.
But here I am, sitting at the big family table with way too many chairs for the three of us and crumbs underneath Bear's seat (see how distractable I am?), staring at a pile of papers with such words at the top like "IN THE SUPERIOR COURT FOR THE STATE OF ALASKA" and official-looking lines and numbers and acronyms I don't want to read.
Today is December 18, 2011. I know this because I've written it at least five times so far on two sheets of paper.
In 20 days my son will be 18. Tomorrow, Yukon and I will troop the State of Alaska Court System and file a Petition for Guardianship.
IT.
I've visited with our attorney, I've listened to the fantastic staff at Mountain High School (who really pushed us this last time to get the legal bowling ball rolling). I get it, I really do. Wolf does not have the capability to make decisions regarding his current and future level of care to help him succeed as an adult. He thinks he can leave MHS the day of his birthday, despite what really will happen (nothing). We must do this. Our heads know, but our hearts have yet to accept the rational explanation.
But it's a big decision, and an ironic one, perhaps.
When the kids who used to be his peers start receiving college acceptance letters or letters of scholarship awards, my son will be receiving an official letter from the State telling him he is now our ward, signed, sealed, and delivered.
Yukon and I are so very torn between sighing with relief that we will be able to continue aiding our disabled son, and signing with resignation at the inevitable fireworks that are sure to follow.
We hope and pray Wolf's birthday on January 6, 2012 will be a true "ephiphany" for him. We hope somehow, in the middle of his ranting, he will feel, if only just a little bit, how very, very, very much he is loved.
But for now, on this dark, windy, and cold afternoon, I continue to sit here; scribbling on my file folders, listening to an Andrea Bocelli CD.
Oh yes, God Bless Us, Everyone.
Please.
Wednesday, November 2, 2011
Simple Gifts
When Yukon texts me, I sometimes panic. Often in a hurry and failing to realize I read between the lines a teensy-bit too much, his fast messages like "Call plz" send me scrambling for the telephone, especially this week. This past month. Okay, for a long time.
We're officially seven months from the date of Yukon's accident that broke his elbow and forever changed our lives. We're three weeks from the latest surgery to unfreeze stubborn joints that, happily, seem to be staying mobile. And now we're three hours from the text message.
"Call me plz."
I did, gripping the phone with a sweaty hand, hoping and praying that what he had to say would be the beginning and not a U-turn from the past weeks and months of utter confusion and pain for all of us. I took a deep breath as Yukon's deep voice answered his cell phone, skipping my usual greeting and offering a query of "Well?"
"Everything's just great!" The words practically tumbled out of his mouth and into my willing ears; and it was. An ultrasound showed no blood clot and no veinous residual from previous clots. He'll have to be careful for long flights, and the risk factor, while low, is still present, but for one who is lucky to be walking the planet upright, that was more than enough good news.
Then he started to cry.
"I'm just so relieved," this unbelievably courageous father, son, and husband said. "I didn't want to worry anybody else, anymore."
The Aaron Copeland CD in my stereo began to play a favorite melody as we reaffirmed our "better/worse, richer/poorer, sickness/health" vows to one another over the telephone, a fitting ending to Yukon's best day, ever...
"Tis the gift to be simple, 'tis the gift to be free,
'Tis the gift to come down where we ought to be-
And when we find ourselves in the place just right
It will be in the valley of love and delight."
Deep breath, Yukon. We did it.
Thursday, October 27, 2011
From the Wolf Den: In the Zone
Wolf and Yukon made it safely to Colorado Springs, weary but in good spirits (or, in as good of spirits as a duo who had been shuffled around more than a deck of cards could possibly be).
Yukon was treated very well by the car rental company who gave him a free upgrade to an SUV, a little benefit that would come in very handy, later. The guys drove up to Denver, found Mountain Time Zone without any difficulty, and proceeded with the admissions process. Wolf almost immediately found a pal from CHYC, a rather nice young man, and then was spied by another kid from New Facility. He was thrilled to know two people, already, and didn't want to leave them to go on his tour of the campus with Yukon. Nice.
According to Yukon, the campus is lovely, in a pleasant neighborhood with attentive staff who seem to possess a great deal of compassion for the youth they serve. There is an indoor swimming pool, "real" school, library, and three small businesses older students utilize as part of a vocational training series. By all accounts from Yukon, the general atmosphere was vastly different from CHYC, and he felt very good about leaving Wolf that evening. For his part, Wolf was quite willing to stay and get settled without any fuss.
Yukon spent the night at his best friend's house in Denver, leaving at 3 a.m. for a 6 a.m. flight out of Colorado Springs to Minneapolis, then Anchorage. In a snowstorm. In that SUV.
He arrived in Anchorage at 3:45 ADT, unshaven, exhausted, but still smiling. Of course he was, he's Yukon.
All I could do was throw my arms around him and thank him for coming into our lives, over and over, and over again.
Thursday, October 20, 2011
From the Wolf Den: Mountain Time Zone
Wolf has been down these past few days, we think caught up in the nothingness of his current situation. New Facility is an incredibly caring, compassionate place, but they are not meant to be a long-term solution. Wolf is bored, frustrated, and so were we, until about 2 p.m.
Best Therapist Ever, who has been working with a dilligence I don't often see in therapy staff, called us this afternoon while I was sitting in the waiting room of Yukon's physical therapist (it seems all I do lately is wait around for or attend therapy in one form or another). Mountain Zone facility in Colorado, one of the leaders in treatment and management of issues similar to Wolf's, accepted him. Even more important, the State of Alaska Medicaid system approved him for transfer, which, we feel, was absolutely due to the Utilization Review Goddess.
Now we begin the process, again. Yukon may or may not be going with us, depending upon his medical clearance. My gal pal from Anchorage, who has worked as hard as we these past few months to help Wolf, will go if Yukon cannot. We've arranged childcare, switched schedules, and taken a few deep breaths in order to prepare ourselves.
We're happy for the potential in Wolf's future. We're happy he will finally have a chance to show us and every member of the Team that he can do this.
Labels:
ADD and Asperger's,
Behavorial health,
Family,
What we learned
Tuesday, September 13, 2011
Be Not Afraid
Trudging slowly through the thick stands of willow and alder trees, my calm exterior belied my shivering insides. I was three miles up a small but vigorous creek in Hallo Bay, Alaska, some 100 miles from Homer and more than 300 miles from Anchorage. A guest of Hallo Bay Bear Camp, I was there to gather material for an article in Alaska Coast Magazine. I'd been there before; a day trip last June left me curious about this camp so far off the grid they used solar, wind, and occasional generator power to function with 20 people in a safari-like atmosphere. I wanted more. What I didn't count on was a whole lot more.
Those who know me best know I have had a strong aversion to bears over the course of my lifetime (I've gotten over the small plane thing; this is Alaska, and if I ever want to get anywhere cool, I've got to fly. So be it.). Bears are big, they are unpredictable, and they are known for doing things on their schedule at their whim. It is not my nature to be in Nature with these beasts, sharing the same trails and creekbeds, and yet there I was.
Hallo Bay guides work endlessly to establish a sort of rapport with these bears, meaning they stay out of their space if at all possible. Guests are drilled on a set of instructions before, during, and after each "encounter" to ensure safety and preparation for the next one; because at Hallo Bay, there is always a next one.
Fortunately or unfortunately depending upon who you talk to, Guide B. and I were the only two-legged people out on the creek that day. It was incredibly stormy, with rain and wind swooshing against our hip waders and rain jackets. It was also noisy; recent rains had left the creek high and water boiled and rushed, leaving us, and the bears, with less warning should the other suddenly appear. My reticence to enter the green, creekside thicket was not unfounded.
As Guide B. slowly led the way over logs, through leafy underbrush, and across smaller stream channels, my brain screamed over and over and over "We.should.not.be.here," an internal monologue I kept up despite B.'s attempts at chatting about our various college degrees, football season, and travel.
Some spots were simply too rough to navigate on land and necessitated a return to the creek where, at our final count, eight bears had been seen fishing or sniffing or scavenging along our three-mile hike. With every bear we spotted and passed on the way up, we knew that the gauntlet would need to be run on the way back, so we ticked off bears; Silver Ears, Scaredy Bear... numbers dwindled as we got closer and closer to the creek's outlet near the beach.
I was nearly there. Faced the giants, even. Damn, I was good.
But then.....
A sow with her three-year-old cub came ambling around the corner, he (?) slipping in and out of the chilly water, playing in the grass, like all youngsters do; she carefully watching his every move yet allowing some freedom, since this was likely the last year he'd be under her protective wing.
B. eased us out into a sand bar to watch their progress and ensure visibility, knowing that bears, with eyesight comparable to ours, would be smelling us soon and our popping out from a willow grove would not be appropriate. We crouched quietly on the shallow sand, and waited.
Cub strayed up to the trail we were standing upon minutes before and Mama remained in the water, but both kept heading our direction; she on one side of us, he on the other. B. took out a flare all guides carry for protection (no guns or spray are allowed at Hallo, but flares provide heat and light and are reliable methods of deterrant) and said "Just wait here, and we'll see what she does. I'm pretty sure she'll cross in front of us to get in between us and her cub."
Pretty sure? Unprintable words rose in my throat as I froze, hunched over on the sandbar which suddenly seemed way to small and infinitely vulnerable to something so, so large.
"Good bear. You're a good bear." B. crooned with the smoothness of Bing Crosby as Mama and Cub came close enough for us to smell their fishy hides. "You're sure she'll cross over?" I quavered. "Sure I'm sure," B. replied, his eyes not leaving Mama for an instant. I did notice, though, that his thumb was heavy on the top of the flare and a large raincoat was within reach of his other hand, something I found out later was also a deterrant (bears hate the noise of flapping fabric).
Seconds felt like hours as the two bears indeed met at our sandbar's point and proceeded to pass us at about 20 feet, so close I could look into Mama's eyes as she warily, but steadily, lumbered by.
"Keep on going, bear. Nice bear, good work, keep moving." B. kept up his one-sided conversation until the two were well on their way upstream, then he slowly placed the flare back in his pocket, strapped the raincoat on his pack, and said, "Let's go."
So we went, our footprints seeming more than a little out of place on the wet sand next to the two other, larger sets.
It was only later that night, sitting in front of the woodstove at camp, that I realized something.
If a mother bear could walk past something so potentially dangerous as two unfamiliar creatures very obviously in her space, and with a cub to boot, then would it not make perfect sense that I could do the same?
Be not afraid.
Tuesday, September 6, 2011
In Step
"When you get married, it's time to learn how to dance correctly."
A resident at the long term care facility I managed told me this just before my wedding. Her generation married young but already knew how to dance. In fact, their children knew how to dance, too, because they were enrolled in etiquette classes. Not so for my generation, and all my residents knew it. They had seen me stumbling around, trying to lead, which was bad, they told me.
For a young lady to truly dance correctly, these proper women patiently instructed, she must both give and receive. Give; as in surrender the irrepressible urge to always know the right way to go, and when, and how. Receive; as in allow the dashing young man (they're always dashing, aren't they?) to completely sweep you into his arms and carry you away on the music, even if the music is unfamiliar, harsh, or not particularly to your liking. As in, trust him to make it work, or, at least try to make it work as one entity, rather than two individuals.
"Partner: Either of two persons who dance together." (Webster's Collegiate Dictionary)
It's our eighth anniversary today.
It's an unfamiliar tune to which Yukon and I are dancing lately, but I trust him to help us with the steps. And he trusts me to let him when I just can't seem to figure out the sequence and my ankles turn on those crazy spiky shoes. The music is indeed harsh, and uncomfortable, but we are moving across the dance floor, one turn at a time.
He's a good partner.
The best, actually.
Sunday, July 31, 2011
Upside-Down in Mother Nature's Arms

The photo above shows a clump of moss and lichen clinging to the skeletal branch of an old spruce tree. Not very unusual at first glance, I suppose, especially since it was taken in southeast Alaska, where moss grows like grass and spruce trees are numerous.
No, what is unique about this beautiful, mossy image is that it was taken from nearly 50 feet in the air by a wet, slippery, and unsure photographer; me. I was lured to a ziplining excursion in Ketchikan on a day even most southeast Alaska residents would call "too wet," along with a group of adventursome (or foolish) other people gathered to propell, rapell, and zip our way from treetop to treetop in a sort of Tarzan-esque experience.
I'm not afraid of heights but I do possess a number of control issues, just ask my kayak instructor and the pilot who flew me out to Hallo Bay last month. The very idea of sliding rapidly down a mountain with nothing but nylon butt straps between me and the forest duff below was not really my idea of a great time. But I did it, and ultimately loved it.
I am the daughter of a forester who taught uhis kids to look up. Up at the sky beyond the tippy tops of evergreen trees, up at the frosty green leaves and branches whose arms stretched to the heavens. I never believed one day I'd be standing among them, on their terms, held tenuously within their generous hands.
That clump of moss with the little sword fern growing out of its deteriorating branch would not have been found near the ground. It grows only there, and in that way, and I would have missed it had I said "no thanks" to the ziplining invite.
It was quiet up there in the trees; the rain made tentative taps upon my helmet and against the decking of the 5' X 5' platform we stood upon as we waited our turn to zip. Occasionally, the wind would gently move each individual tree back and forth with a rhythm that was, surprisingly, not scary at all.
Perhaps Mother Nature is less scary than we think, if given the proper respect. Perhaps Life is, as well.
Saturday, July 2, 2011
From the Wolf Den: "What a Marvelous Puzzle You Are"

"Extraordinary things only happen to extraordinary people. Perhaps this is the merely a chance to go beyond your dreams." - Reepicheep
For Wolf and I, watching this movie was our final activity together. It was, I believe, a preface for the coming weeks of uncertainty and awkwardness for Wolf, who can, as we all know, act boorish, quite irritatingly so.
Wolf will be transferring the week of July 18 to Northern House (I just made that up). He might find, as Eustace eventually did, that being a dragon might not be so bad. But, as Eustace also discovered, it is up to him to find out how. Wanting so much to be the coolest but not knowing how, Asperger Syndrome has created a wonderfully intelligent but socially confused young man, desiring the best of friends but only succeeding in pushing others away.
Perhaps, if he looks at himself for what he is and what he can be, he will be the stuff of his dreams. Dragons aren't so bad. They spit fire, have wings and, as Reep said so eloquently, "have skin of chain mail to deter any swordsman."
To be a dragon. To be extraordinary. To save the day. For Wolf, the sky's the limit. His chance is finally here.
Join me in wishing him that.
Labels:
Asperger's,
Bring the Kids Home,
Children,
What we learned
Saturday, June 4, 2011
Yukon Goes and I Stay

This is the first night I've spent alone in my bed not lying huddled under the covers crying and praying and bargaining with God to please, please, save my husband. Nor will I wake up every five minutes thinking I heard the landline ring or my cell phone vibrate.
Yukon is gone, and I'm here. I didn't even get to take him to the airport where he left for a week in Medford, Oregon for a business trip. Strange, but at the same time wonderful. How crazy is that?
Granted, our lives are different, now. While Yukon's elbow has healed well it is still locked in a funky position that makes carrying things like luggage a bit difficult. This is the first solo trip since the bicycle crash that sent Yukon and our family careening into a month of hospitals, therapy appointments, and discoveries of faith and loss. But he, and we, survived, and I suppose this day had to arrive at some point.
This is the part of caregiving many people forget about; the letting go. Letting go the pain of illness. Relinquishing my almost-constant supervision over Yukon's broken body and allowing him to make decisions concerning therapy and treatment and asking before jumping in myself. Releasing my patient and reconnecting with my husband.
This will be a good week for both of us. Yukon can power ahead with some important work and visit his parents, who are most anxious to lay eyes upon their youngest son. Bear will be able to see with his own eyes Dad is able to get through the airport, onto a plane, and to his grandparents house all by himself (this has worried him).
And I?
I'm going to finally switch back to my side of the bed.
Where I belong.
Thursday, June 2, 2011
From the Wolf Den: Listen To Me
I like to think I listen to my children, but in reality I probably don't as much as I should. In 17 + years of parenting there is a lot of listening; to joys, fears, irrational explanations, complaints.
We have a lot on our minds, we moms and dads, and sometimes we're way ahead of our kids when they rush through the door at the end of the day, thinking already about what to thaw out for dinner or how the heck we'll manage to drive to running club while juggling a teleconference.
Kid says to us "Guess what happened today?" and before he even has time to throw his backpack on the floor we're already interrupting to say "Put your backpack in the proper place and take off your shoes and don't forget to start your homework!" Kid goes to do all these things, and we both forget what happened today.
Guilty.
It's even more complicated with Wolf. With so much of our communication over the phone and so many limitations currently placed upon his worldly experiences, it's hard sometimes to listen. Add in an endless explanation about the current Obsession of the Week and sometimes 15 minutes feels like 50. This weekend was one of those conversations. Memorial Day crowd over at the house, a beautiful day, and Wolf wanted to talk about the Enterprise.
Guiltier.
But we try, and to be fair, Wolf does, too. Knowing that sometimes he falls back into a comfortable form of communication when stressed or tired or upset means Yukon and I must be the ones to ask the questions and do the engaging. Active listening at its best.
Bear calls me on it all the time. "Mommy, you're not listening to me!" And perhaps I'm not. Perhaps this child is the one to be my reminder when Wolf comes home and requires more listening than other kids.
Listen to me.
Listen. To. Me.
Labels:
Behavorial health,
Children,
Family,
What we learned
Friday, May 20, 2011
Enraptured by the Rapture
I will say that this whole Rapture silliness was funnier before I talked with my teenager, who believed all the hype and truly did think the world was coming to an end.
This must be terribly confusing for he and others with similar disabilities like him, who take everything literally.
Part of me thinks, though, that I busted his bubble when I said the zombies were not coming to take over the earth. His favorite book is the Zombie Survival Guide.
Good gracious. Enough already.
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