Friday, September 2, 2011

Update From the Wolf Den: Everybody Hurts

Changes are hard, even traumatic, for children on the autism spectrum. For Wolf, they are made even more difficult due his extreme impulse control problem. He's been struggling mightily this week after a transition into a strict, unbending, yet very loving new home (a good thing).

He's been running away almost every night. It's not safe, it's not appropriate, and it's hell on us.

And now our worst fears may be realized. Bringing Wolf home was a difficult decision driven partly by Alaska Medicaid and partly by us. Three years at CHYC was a long time, and something had to change. As initially positive the move back to Alaska was, and as beautiful our moments of reunion were, Wolf is resorting to primal reactions to basic interactions (and conflicts) with other people, and is manifesting his disorder(s) through running and all the absolutely negative behavior that goes along with it.

Who knows? Maybe I'd spend my life running, too, if inside I had no idea who I was or why my brain was telling me to do things I didn't understand, and if the world appeared to be a jumble of other people telling me to do things as well.

I have spent the day on both my cell phone and the landline, on multiple conference calls, to put together a plan of care for Wolf in both the short and long-term. Thank God I have a background in long term care, for the scenarios and paperwork and emails might otherwise swallow me whole.

Nonetheless, my kleenex box is as empty as my heart, right now.

1 comment:

Marge said...

I am so sorry to hear that Wolf is having problems. It sounded so good at first, but we know things can change in a millisecond. I hope you can find a solution that benefits all of you, but especially Wolf. And you're right. We would all probably do the same thing if our brains were working like his.

Know that you will be in my thoughts and prayers.